It is with a heavy heart that I share news about my son Kole. Our family’s beloved one-year-old, baby has been diagnosed with Monosomy 7 and MDS (Myelodysplastic Syndrome), which affects 4 in 1 Million children and the only treatment is chemo and a bone marrow transplant. This is a rare form of Leukemia, and will eventually progress to AML (Acute Myeloid Leukemia) if no bone marrow transplant happens. It's a diagnosis that has taken us all by surprise and brought an immense weight upon my family’s shoulders.
In moments like these, it's easy to feel overwhelmed, scared, and uncertain about what lies ahead. But amidst this storm, we've found strength in each other, in the unwavering support from our family and friends, and in the incredible medical team guiding us through this journey at Dana Farber Cancer Institute.
Kole is a fighter, and we're committed to fighting this battle together as a family. We're surrounded by love, hope, and the determination to see our little one through this challenging time.
We've embarked on a journey that will undoubtedly have its ups and downs, but we believe in the power of resilience and the miracles that modern medicine can offer. We're holding onto every ounce of positivity and faith.
Your support means the world to us. Your prayers, kind words, and gestures of love are the pillars that uphold us during these trying times. While the road ahead may seem daunting, we take solace in the strength of our unity and the unyielding love that binds us together.
We kindly ask for your continued thoughts, prayers, and support as we navigate this journey. Together, we will uplift each other and carry Kole through this challenging chapter, ensuring he feels surrounded by love, hope, and unwavering determination.
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